Quantcast Can we get some Pixie Dust for Hayden please.
 
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  1. #1
    Join Date
    Apr 2007
    Location
    Clermont, FL...30 mins from Disney!
    Posts
    1,244
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    Default Can we get some Pixie Dust for Hayden please.

    Hey everyone this has always worked in the past so I know it will work this time too.

    As many of you know my son Hayden is fighting an eventual losing balance with Krabbe disease. So far he has done fantastic job and has blown all expectations out of the water.

    This week the alergies around here have been kicking his little butt. We have been up with him all night for the past two nights suctioning him and keeping his airways clear so he doesn't suffocate in his sleep. Plus he slept for over 16 hours yesterday. Well Eva (my DW and Hayden's mommy) took him to the pediatrician this morning and they have decided that he has severe allergies and an upper respritory inflamatin and they have decided to put him on oxygen until he gets over this crud.

    AND HERE WE ARE ONLY THREE DAYS FROM OUR VACATION!! Although all the doctor's and his nurse have said he will be fine to travel it's still stressful.

    Well thank you for listening to me vent. I know the pixie dust will be flying in any minute so thank you in advance.

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  3. #2
    Join Date
    Apr 2008
    Location
    Chapel Hill, NC
    Posts
    248
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    Default Pixie Dust for you...

    Hi there,

    Also in NC and I agree the pollen and stuff is out of control. I just wanted to send you best wishes and lots of prayers for a happy trip... I hope your little guy continues to be his strong self and that the allergies aren't so bad in Fla...sorry that you have the added stress...


  4. #3
    Join Date
    May 2007
    Location
    Manassas, VA
    Posts
    911
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    Post

    Here Kyle! I haven't been on in a week or so and just got on to check when your trip was! I knew it was in May sometime! I hate it for Hayden that he has to have this allergy set back! I will put him on the prayer chain at our church this week! Prayers to you and Eva for all the worrying you will do before you leave! Hang in there and have SOOOO much fun! This is a milestone trip for Hayden! I hope it's your best yet!! ~Jenny

  5. #4
    Join Date
    Jan 2008
    Location
    the beautiful Outer Banks of NC
    Posts
    1,141
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    Default




    Im in NC too and the pollen is crazy this time of year!

    Im sending all my positive vibes & well wishes towards your little Hayden and trip and beyond.
    '94-DVC OKW * '94-'96 OKW * '97 OKW, BWV * '98 OKW, DI * '99 OKW, FW * '00 OKW, VB * '01 OKW,Y&BC,BWV * '02 SSR * '03-'05 OKW*2006 BWV,AKL*'07 OKW * '08 AKV, SSR * '10 BLT * '11 BLT Next: 03/13 WL

  6. #5
    Join Date
    Feb 2003
    Location
    Lafayette, Louisiana
    Posts
    287
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    Default

    Will definitely keep you guys in my thoughts and prayers.



    Robyn
    I never look back, darling! It distracts from the now.

  7. #6
    Join Date
    Feb 2005
    Location
    Mickey's backyard (Orlando, FL)
    Posts
    3,746
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    Default

    Oh no! Sending prayers and best wishes your way!!
    Cruises:
    Feb 12-16, 2012 (Dream), Oct 20-27, 2012 (Fantasy Eastern), Sept 8-12, 2013 (Dream) Jan 20-24, 2014 (Magic) Sept 14-18, 2015 (Dream) Sept 25-29, 2017 (Dream) Sept 22-29, 2018 (Fantasy Eastern) Sept 23-27, 2019 (Dream)

  8. #7
    Join Date
    Jan 2007
    Location
    Pittsburgh
    Posts
    1,104
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    Default




    Your family is in my prayers.
    Then: #runICOT 1/16
    GC Disneyland 10/15
    #runICOT 1/15
    OKW 7/14
    BWV #runICOT 1/14
    VBR and BCV 7/13
    AoA 10/12 iCOT 15th!
    VBR, OKW, Magic, & AKL 5/12
    BCV, BLT, Dream 8/11
    BWV 9/09
    AKV & DCL Magic 5/09
    POR 11/08 (no KIDS)
    BWV 6/08
    SSR 11/07
    AKL - 5/06
    Offsite 6/05
    ASM 7/99
    Offsite 3/97

  9. #8
    Join Date
    Jul 2005
    Location
    Ontario, Canada
    Posts
    8,534
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    Default

    Prayers and Pixie Dust to you, your wife and Hayden!
    Heather aka ibelieveindisneymagic
    INTERCOT Staff


    Engaged at the castle!
    My Disney Home is POFQ

  10. #9
    Join Date
    Apr 2006
    Location
    N.C.
    Posts
    1,538
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    Default

    Hayden has been so strong and such a wonderful trooper through everything he's endured to this point. Allergies can be a butt kicker, but he has that "umph" to kick it. Just remember to keep him well hydrated and to rest. I have faith in him as well as you and Eva also. From all of the things you've said about him in the past, he has taught your family so much about love, caring and support, and it doesn't sound like he's through.

    Here's lots of , and more You are truly an amazing family.
    °O°Amy °O° DVC Member
    2011 Dec-Poly with the grandparents--whoo-hoo!!!
    2011 June-SSR!!!!!
    2008 Aug-Colbey&Gray's Birthday surprise-SSR/OKW
    2008 June-SSR
    2006 June-Port Orleans Riverside
    2004 Easter-CSR
    1988 May-Graduation
    1982 Offsite
    1980 Offsite

  11. #10
    Join Date
    Jun 2004
    Location
    Canton,Oh
    Posts
    864
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    Hope Hayden feels stronger soon!
    May'98-WL
    Sept'01-POFQ
    Oct'03-ASM
    Aug'04-CBR & Charley
    Dec'05- WL-Joined DVC
    June'06- DL's Grand Californian
    Nov '06 SSR
    Oct '07 SSR with extended family
    Oct '08 Disney Wonder/OKW
    Nov '09 AKV @ Kidani
    Nov '10 Kidani
    Nov '11 VWL
    May-June 13 Kidani
    Feb-March '14 SSR

  12. #11
    Join Date
    Nov 1999
    Location
    Mid Michigan
    Posts
    26,671
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    Default

    Hayden will be in my prayers ( as will be his wonderful parents).
    Jeff

  13. #12
    Join Date
    Oct 2001
    Location
    Michigan
    Posts
    16,776
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    Default

    Pixie dust for Hayden.
    Mary

    Been there, done that, definitely going back!

  14. #13
    Join Date
    Dec 2001
    Location
    Virginia
    Posts
    42,477
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    Default

    Hopefully the change in location will be exactly what Hayden needs!

  15. #14
    Join Date
    Jun 2005
    Location
    Brunswick ,Maine
    Posts
    1,783
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    Default

    Sending tons of pixie dust Haydens way and a little extra for you and mom, it sounds like the trip is just what you all need. I hope he's feeling 100% soon.
    °o° Traci ¨¨*:•

    Next up, hopefully, Just me & my Honey Sept. 9-14 ASMu celebrating 30 yrs and my b-day. Thanks Denise from MJ :) for the help so far & answering all my stupid questions.

    Countless previous trips

  16. #15
    Join Date
    Jan 2001
    Location
    between Jack Daniels and George Dickel
    Posts
    14,804
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    Default

    for Hayden .
    first visIt: November 1973
    last visit: December, 2012
    next planned visit: October, 2013 with friends
    resident Fairy Godmother


    hearts are warmed when friends meet


    see ya real soon


    ~*~*~*disneydeb*~*~*~

  17. #16
    Join Date
    Jul 2004
    Location
    Tarrytown, ny
    Posts
    147
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    Default

    for Hayden.
    1989 CBR & CONT. Honeymoon
    1991 CONT.
    1995 WL
    1996 ALLSTARS
    1997 BWI & Became DVC Member
    1999-2000 BWV
    2001 ALK & VERO
    2002 ALK
    2003 BCV
    2004 POLY
    2005 BCV
    2006 JUNE/JULY ALK & WLV
    2008 July BWV

  18. #17
    Join Date
    Jan 2005
    Location
    Wales
    Posts
    112
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    Default



    loads and load of Pixie dust on its way over from the UK

    Gareth ºoºwen

    DVC Member - My Home Resorts: AKV

    Previous visits:
    1991, 1992, 1994, 1996, 1999, 2001, 2005, DLParis 2006, 2007, 2008 AKV, 2011 Baylake & AKV, 2011 Saratoga, 2013 AKV & Saratoga, 2014 Saratoga & Keywest, 2015 Keywest & Saratoga, 2016 COMING SOON

  19. #18
    Join Date
    Nov 2004
    Location
    johnstown pa
    Posts
    4,118
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    Thumbs up Pixie Dust

    Pixie Dust for Hayden.

    Lanny
    Have been going to WDW since 1981
    Have a Great Day
    Health and Happiness to all Disney Freaks

  20. #19
    Join Date
    Oct 2004
    Location
    Santa Rosa Beach, FL
    Posts
    12,954
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    Default

    Lots of and prayers for Hayden!!! And for you and Eva, too. Keep us updated, Kyle!
    Chris, aka Strmchsr
    INTERCOT Staff: Vacation Planning, Guests with Special Needs, and Weather Guru

  21. #20
    Join Date
    Jan 2001
    Location
    Cameron, NC
    Posts
    8,210
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    Default

    Prayers, pixie dust and positive thoughts on their way. God Bless!
    Carol (aka KylesMom)
    INTERCOT Staff: Mousellaneous & Trip Reports
    Last Trip: ICOT 15
    Happy A/P Holder 2002 - 2011

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