Sending lots of prayers and good vibes your way! I hope all turns out well and you get answers soon!
~Nikki~
Last Trip: February 2024
Next Trips: April 2024
UPDATE:
David has a platelet condition called ITP. Results look good that his platelet count should be back to normal in 3-6 months. If not they will do some treatments to help it along which in that case it could be a year or so. He said he doesn't generally see this in children of this age. Usually it is younger.
In the mean time low key activities for him. No jumping, running, climbing trees, contact sports, anything that could cause a bleed, especially yo the head.
They are very confident at this point there is no cancer.
Thank you all so much for all thoughts, :pixie: and prayers. Now the long road to recovery.
Terra - Wife, mother, special needs teacher. Disney addict! °o°
Advocate for my 2 sons. David: Auto-immune disorder. Praying for remission!ASD/SPD & Aaron: ADHD/Anxiety/ASD. Life makes us stronger!
I wish David a speedy recovery!!
Linda aka: Faline
INTERCOT Staff: Vacation Planning,Trip Reports and Disney Camping
faline@intercot.com
Glad to hear you have a diagnosis. ITP is what my brother had. Not having to take any meds is a good thing, my brother needed prednisone. I am sure he will be back to his old self in no time!
Brian (aka CanadianWDWFan)
INTERCOT Staff:Theme Parks, The Water Cooler & Trip Reports
DVC-BWV, Riviera
:pixie::pixie::pixie:
Marci
Many visits. Live 20 minutes from the parks.
Work at Universal Studios in Diagon Alley. Ollivanders/ wand magic.
So glad the specialist had a diagnosis & treatment plan. David is on the road to recovery. Sending you more [emoji14]ixies & prayers.
prayers and :pixie: coming your way!!! :pixie: :pixie: :pixie:
Been there, done that and going back!!! See ya real soon !!!
Terra we will keep David in prayer. Please keep us updated.
Julie:mickey:
Next Up:
Summer 2018... WE ARE BACK!!!
2 families
4 teenagers and Larry
Taking on the parks!
Great news ... glad to hear they were able to identify it and there is a treatment plan in place. Best wishes for a speedy recovery!
Ian ºOº
INTERCOT Senior Imagineer
Veteran of over 60 trips to Disney theme parks and proud to have stayed in every Disney resort in the continental United States! º0º
Next trip:
April 2018 - Saratoga Springs Treehouse
Help support INTERCOT's sponsors!!!
Great news!
Sending prayers and Pixie Dust for David and your family. We all want to be here for you so keep us posted as he recovers. :pixie::pixie::pixie:
"Im a storyteller. Of all the things I've ever done, I'd like to be remembered as a storyteller." Walt Disney
The mighty Roman Empire bridged 3 continents with a vast system of roads. The fastest information highways the world had ever known.
East, West, North and South, all roads led to Rome
Glad you got the results back so quickly. Sending lots of :pixie: pixie dust for a speedy recovery!
Feb 26 - Mar 5, 2019 Port Orleans Riverside
Sept 13-19, 2015 at CBR
Jan, 2011 - off site
Jun 16-21, 2009, ASSports
Dec. 7-13, 2008, Royal Plaza at DTD
April 16-20, 2007 ASMusic
Feb-Mar 2005 Off Site
Oct. 1986 Ft. Wilderness 10th Anniv
Oct. 1976 Honeymoon Off Site
Prayers, {{{Huggs}}} and :pixie:
'83~Off
'91~Off
'93~Off
'96~Off
'97~Off
'99~Off
'00~Contemporary/Disney Magic (Jul)
'00~WL (Dec)
'01~Off
'02~POR
'03~Disney Wonder/AKL (Aug)
'03~WL(Dec)
'04~Saratoga
'05~Polynesian (Apr)
'05~Pop (Sep)
'06~POR FQ
'14-Pop
'16~Off (March)
'16~ASMusic (Aug)
'17~Off'
UPDATE:
So we had our first set back on this journey. His platelet levels got up to about 31K
And then plummeted over the next week or so.
This past Tuesday evening he got hit in the head and we have to take him for safe precautions, to get examined. Well within a few hours, he started brusing again and lots of petechiae all over his body.
They did a cat scan and he had no brain bleeds thank God. But his platelets had dropped to critical level [10K].
So they transported him from our local hospital to Nemours.
They checked his levels again as soon as they got there and they had dropped to 8K. A 2K drop in less than 4 hours.
He was admitted and then did a RHoGam treatment. Which basically boosts the platelets up enough to get out of critical level. It's a temporary fix, but helps so they don't risk any internal bleeding which is what we want to avoid because that's when things can get bad quickly.
So we were there from Tuesday night until Thursday afternoon. His levels finally came up to 26K which gets us just out of critical level. Still low, but less threatening.
Still have a long road ahead of us until this all resolves itself.
I think the worst part is that any treatment is basically a temporary fix until the body straightens itself out and the ITP goes into remission.
Here's to months of recovery ;)
Thank you for continued thoughts, prayers, love & light...and lots of :pixie:
Sadly though because of all this, money is tight having to go back and forth to Nemours and with him having to be less active, I've had to cancel our annual labor day vacation to Disney. Just can't swing paying for the hotel and meals for 4 days. We can go over for a day trip though. Thinking Animal Kingdom where it can be more low key but lots of fun exploring. They love AK!
Terra - Wife, mother, special needs teacher. Disney addict! °o°
Advocate for my 2 sons. David: Auto-immune disorder. Praying for remission!ASD/SPD & Aaron: ADHD/Anxiety/ASD. Life makes us stronger!
Sending prayers and pixie dust to you and your family!
Thank you for keeping us updated on David.
:pixie: :pixie: :pixie:
"Im a storyteller. Of all the things I've ever done, I'd like to be remembered as a storyteller." Walt Disney
The mighty Roman Empire bridged 3 continents with a vast system of roads. The fastest information highways the world had ever known.
East, West, North and South, all roads led to Rome
Thanks for the update. Continued prayers and pixie dust :pixie::pixie::pixie:
- Lynn -
INTERCOT Staff: Theme Parks, DVC
















